Motor Neuron Disease Association

MND is a fatal neuronal disease affecting the brain and nerves.

It attacks the nerves that control movement so muscles no longer work. It does not usually affect the senses such as sight, sound, feeling etc.

Motor neuron disease kills a third of people within a year and more than half within two years of diagnosis.

 

 

The MND Association was founded in 1979 by a group of volunteers with experience of living with or caring for someone with MND. They are the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.

 

They improve care and support for people with MND, their families and carers by:

 

  • Funding and promoting research that leads to new understanding and treatments, and brings us closer to a cure for MND.

  • Campaigning and raising awareness so the needs of people with MND and everyone who cares for them are recognised and addressed by wider society.

CAMPAIGNS & RESEARCH

scap6months campaign

MND association's scrap6months campaign calls for the government to allow terminally ill individuals, including those with MND, to access their benefits quickly and with ease. 

Currently the fast track process to claim benefits requires  'reasonable expectation of death within six months', which excludes many people with an unpredictable terminal illness like MND.

Despite claiming to review this in July 2019, there has been very little progress. 

The MND association are currently running a twitter campaign. Check out their website for more information. 

Research

The MND Association has over 30 years of experience identifying and funding the most promising MND research.

We are a leader in the funding and promotion of cutting-edge MND research, both within the UK and across the world.

 

All of the research projects that we fund have clear clinical relevance and/or therapeutic potential.

They also run  a Lady Edith Wolfson Fellowship Programme which helps to attract researchers into MND treatment research.

Why not join one the fundraising events, or even better create your own!

Check out their website for more information

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